Bursting Bubble

Bursting Bubble

Got that feeling
Unappealing
'stead of healing
Head is reeling
Down here kneeling
I'm appealing
To the ceiling
Are we dealing
With this rubble
Pressure double
Bursting bubble
Mental trouble

No digression
Just confession
My oppression
Is possession
By depression
Not transgression
I'm no sinner
Story spinner
Smirking grinner
Cheating winner

No, my inner
Light is dimmer
Feelings simmer
Barely glimmer
Feeble shimmer
Drowning swimmer
In salt water
Tears that oughta
Merit quarter
From this slaughter

But I'm fated
To be weighted
Inundated
Subjugated
Dissipated
Terminated

The acid test
Of my distressed
Emotive quest
Are you impressed
Or do you jest
While I attest
And bare my breast
With pain expressed?

Light I'm shining
Through my whining
Underlining
My declining
Disposition
Proposition
Hopeful mission
My ambition
Is transition
To remission
Not attrition
Of cognition

Fear and Self-loathing

Fear and Self-loathing

Funny old week. Funny old life, actually, and no mistake. I mean, it really brings it home to you, brings you down to earth with a jolt that might even knock some sense into your tired old grey matter, my girl.

It’s all so… Normal, I guess. No, that’s not it. Not what I meant. Close but no cigar, as they say. Whoever “they” might be. Did you ever wonder about “them”, wonder why or even how they say so much and everybody knows what they’ve said, but nobody knows who they are?

I did. I wondered. Sat awake nights thinking about it. About lots of the things people say. I bet most of the ones who’ve said things to me over the years don’t even remember half of what they said. Not half. Probably not even a tenth of the words they casually tossed at me. Like you’d throw scraps to a dog.

But that was better than the ones who aimed sharp words in place of stones. Teasing they called it. Horrible word. Dressing up their malice in bright clothes to make believe it was fun. I think it was fun for them. Fun to point at the odd one, make sure she knew she was on the outside.

“Sticks and stones” is what I got told when I objected. “Words can’t hurt you.” Those words right there hurt me even more because they told me I was alone.

Being alone. It is my normal, I’m used to it. Everybody leaves me in the end. Still, on the bright side if I’m on my own then there’s nobody there to hurt me more. Just me and my past, strolling hand in hand down memory lane.

Yeah, a dead-end street, that. Past the gutted wrecks and garbage, scabrous walls with the remains of graffiti. Don’t look too closely at where you’re treading, avoid the eyes that peer from shadows.

I remember when all this was trees, when the sun shone and I would run around, laughing. But that was before. You know they say you can never go back? Them again, they get about. Never go back. You want to know why I can’t go back? Because I never managed to leave.

The old home town, you wouldn’t recognise it. All that time, all those lives, gone. Dark now.

Yeah, funny old week, like I said. Being close to Death will do that, you know? All those thoughts of mortality, all that pent-up grief, all the weight of realisation that you don’t deserve to be the one left.

I should ask them why, next time they’re around. Who knows, maybe this time they’ll tell me.

Anyway, I’m doing fine. Thanks for asking. That’s what I’m supposed to say, right?

And you?

When Care is Really Control

When Care is Really Control

As an autistic woman myself, I know I’m not alone in seeking the security of a stable, dependable home life. I sucked badly at taking care of myself when I first lived away from home at university: I was intimidated by communal cooking and laundry areas.

The pattern repeated when I moved away for work: my awful, almost-non-existent organisational skills left me struggling with all manner of domestic tasks from my finances to making sure I had food and clean clothes. I was pretty much living off take-aways when I met someone.

In my first committed relationship we set up home together, had a daughter and got married so quickly that it’s a bit of a blur in my memories. With hindsight, we weren’t well-matched and the marriage didn’t last. I think we both had breakdowns after it imploded and we went our separate ways.

Within only a few months I found myself in another relationship. You might be thinking “rebound”. Looking back, I am thinking “rebound”. But at the time I blithely dismissed concerns that I was rushing headlong into things (again) and declared that it was true love.

The marriage (for that’s what we did in our second year together) appeared to start well. Despite my partner’s occasional displays of drunken aggression, sometimes in public, we got along pretty well. Or so I thought, but in reality I was adapting to minimise the friction.

Over time I let my spouse manage all the household finances, cook the meals, choose how the home was decorated. In return I got the illusion of security and stability. I say illusion because there was always the implicit threat of being thrown out, always some reason why I couldn’t become a joint tenant.

My ties to family and friends weakened as I gradually lost contact, being made to feel guilty for spending any time with them rather than my spouse. When we went out I’d often be left sat on my own while they went around socialising, while if I ever did the same I got accused of spending no time with them.

I became well-versed in my failings due to having them pointed out regularly: how I couldn’t cope on my own, and how I’d have ended up in an awful mess if it hadn’t been for my spouse. I actually felt grateful for it, for their control over my life, making order out of the chaos.

On a number of occasions they got drunkenly argumentative and locked me out, only to be extra nice the next day after allowing me back in. A couple of times I tried to leave, spent a day or two sofa-surfing at mutual friends’ places before giving in to the pleas for me to return, promising it would be different.

A couple of times I tried to kill myself, washing down handfuls of pills with whisky or other alcohol, but I always ended up vomiting them out and surviving.

By the end I was spending a lot of time in a little box room on my own. When I felt especially threatened I would wedge a chair under the door handle to prevent my spouse from getting in, and I’d cower in there while they hammered on the door and shouted threats.

All this and I still couldn’t leave. I no longer believed I was being cared for, but having any home seemed preferable to the unknown chaos of life on my own. There were just so many things I would have to do to get away that trying to think about it overwhelmed me.

I was in mental health crisis, on medication, unable to work and suffering frequent panic attacks. My counsellor helped by guiding me through the process of organising my thoughts into an exit plan. My daughter helped me find a place to live, and assisted with setting up home there.

Things aren’t perfect, even more than a year and a half later. The emotional abuse over those years has seriously damaged my mental health and I have complex PTSD, frequent suicidal thoughts, and a bunch of new scars from self-harm.

But I also have support, and perhaps more importantly I have belief in myself. I know now that I can survive life on my own. That’s not to say I don’t struggle, and keeping on top of bills and household chores will always be difficult.

It’s tempting to let others manage aspects of your life in the belief that they will care for you. But all too often this dependency forms the basis of control, of abuse, and that is far from healthy. It took me a long time to recognise the signs, and I let my judgement be swayed by the person who was abusing me because they claimed to be looking after me and had undermined my confidence in myself: I believed their words over the evidence of my own eyes.

We autistic people are particularly at risk from those who would take advantage of us, abuse the trust we place in them and end up harming us. We become dependent on carers. Look out for warning signs like these:

  • If you find yourself making excuses for your partner or carer when others question the way they treat you.
  • If they regularly act aggressively towards you, shout at you, or otherwise make you feel scared of them, make you afraid to challenge them.
  • If they often tell you what you can or can’t do.
  • If they alternate between being cruel or nasty towards you, and apologising and being extra nice for a while.
  • If you frequently get criticised, teased or called hurtful names: if they keep finding fault with things you do or say.
  • If they make you feel guilty for spending time with other people, or make you feel bad if you interact with others online: if they isolate you from people you used to have around you.
  • If you aren’t allowed access to your own money, or don’t have a say in things you buy or do.