AIM for the Rainbow

AIM for the Rainbow

Many of you will know that I am on the board of Autistic Inclusive Meets, an organisation run by and for autistic and neurodivergent children and adults to provide services and support, as well as actively campaigning to improve lives.

Well, I have exciting news: we’re picking up an idea we had in the early days of AIM and launching AIM for the Rainbow, a part of AIM that will focus on the particular needs of autistic and neurodivergent LGBTQIA+ people of all ages.

I’m especially proud to be involved as an autistic bisexual trans woman. I intend to make this the kind of resource I wish I’d had when I was growing up. Information, support, and connecting with your peers are of the utmost importance when you’re discovering your own gender and sexuality, so we want this to be a safe space where people can do this without fear.

We’ll be collecting links to resources that we personally trust and endorse. We’ll share our stories, and those of others like us. And we’ll be working to improve the lives of all of us under the rainbow.

It’s going to be great. We’re aiming high: we’re aiming for the Rainbow!

#Brexit – A Letter to my MP

#Brexit – A Letter to my MP

Dear Ranil,

I’m contacting you as one of your constituents [address redacted] because I have grave concerns regarding the handling of the UK’s withdrawal from the EU.

My daughter is [age redacted] and has been living in Sweden for about 18 months with her Swedish partner. [Personal details redacted] the continuing uncertainty regarding her status as a UK national living in a EU country after the 29th March is causing her immense distress. Nobody, not the Swedish authorities and certainly not the UK government (it seems) are able to provide guidance as to what will happen to her.

I also have concerns regarding the preservation of the Good Friday Agreement in the event that the UK does not manage to avoid coming to the end of the withdrawal period without an agreement in place. I remember all too well the IRA mainland bombing campaign, the bombings in Manchester and Warrington especially since I grew up near Wigan and my father worked in the city centre of Manchester in a street that saw damage from that blast. I rightly fear a return to those days if the peace agreement that has lasted half my life is not protected.

My feelings about the unutterable folly of Brexit aside, I urge you and your colleagues in parliament to seek a rapid conclusion to this sorry episode so that we can all finally have some stability in our lives. After promising strength and stability, Theresa May triggered Article 50 without any clear idea of what our future relationship with the EU would look like, and she has led the UK into some of the most turbulent times I’ve experienced in my 45 years. I am watching in dismay as our global reputation sinks below the waves that surround us.

The past two and a bit years since the referendum have been truly awful. I’ve felt constant anxiety and I’m not sure I feel like I belong in this country given the isolationist direction in which it is heading. I have ties of friendship and family across Europe (and beyond) and having my EU citizenship taken from me against my will feels like a betrayal, and not one I think I can easily forgive.

Yours,

Alexandra Forshaw (Miss)

Nobody’s Puppet

Nobody’s Puppet

I heard about the play, All in a Row, the other day. Specifically, I read what the writer had to say about deciding that the character of an autistic boy with “challenging behaviour” could only be portrayed by a puppet.

I know so many autistic people who have dedicated many years to overcoming society’s prejudices, fighting against the dehumanisation and othering of autistic children and adults.

And then we saw this. Among a cast of real humans, played by human actors, the single autistic is indelibly marked as an outsider. Perhaps he can, like Pinocchio, dream of one day becoming a real boy, but for now he’s cast out of humanity.

It’s hard to express just how painful it is as an autistic person to see someone who is essentially like you–the character with whom you have the most in common–portrayed this way. To be dehumanised, an empty, soulless shell incapable of any thought, feeling or expression, whose every action is in response another’s command.

This is the very embodiment of the prejudice and, yes, even hate that we face in our autistic lives. We live the reality of being labelled emotionless, incompetent, unfeeling, thoughtless. The agonising wounds of our experiences are opened afresh by this careless action, by seeing this puppet represent every insult levelled at us by our bullies and abusers.

And that is why using a puppet to portray an autistic person among a cast of human actors is unacceptable.

An empty boy with empty head,
My only life is what you bring
In gift each day, my will is yours.
I go where you direct my string.

What do you see inside this shell,
Behind this vacant glassy stare?
Could anybody care enough
To ever see the person there?

I didn't ask to be your puppet
To play this part that you defined.
Am I lost, forever other,
Denied my place with human kind?
Attachment

Attachment

I’m very attached to this scarf. What a strange thing to say! After all, it’s not tied to me or glued to my hand. Except…

Even without looking at it or touching it–if I appear to ignore it for days at a time–it’s here with me. It’s connected to me, attached by invisible strings of memory and emotion to my mind and my heart, to my very soul.

I look at it with eyes that span decades, seeing it adorn my mother in far-off places and times. The threads of the fabric are intimately woven with the threads of my memory, inseparable.

When I hold it I am holding my own history, holding a piece of my mother close to me, holding her even though she’s been gone all these years. Gone from life perhaps, but still very much alive in me.

Objects and memory are entwined, carefully packaged, wrapped in each other so that they will be protected and preserved.

Of course it’s still a scarf, not a museum piece, and I wear it often when winter’s chill is in the air. With its gorgeous crimson, russet and bronze, and the silky sheen of its fabric, it whispers seductively to my sense of beauty and I love it in its own right.

It would feel wrong to let it languish in a drawer, unseen. My mother was very sociable, having a wide circle of good friends, and enjoyed being around people. To see and be seen. And so it feels fitting that I wear this scarf, let it be seen.

Objects can be cherished and cared for while also being used. To me their value comes not from being pristine, but from having a history. Each association, each memory, each attachment adds some intangible value beyond price.

In the case of my mother’s scarf–now my scarf–the value might only be fully apparent to me. Others might admire it as a desirable accessory, but its deeper connections are mine alone. To me it’s unique, priceless, irreplaceable.

I could never let it go, except to my daughter in her turn. It represents a family bond back through time. This object is tied in to my fondest memories, embroidered with the love between my mother and me, and I’m far too attached to part with it.